CRPS

Wow it has been a loooong time since the last post!

A lot of things have happened over the last couple of years, some good, and some bad. One GOOD thing is that I was finally approved for Social Security. Man has that made life better! Was able to replace the car, and other things we sold or lost over the years we were trying to get approved for Social Security Disablity.

The RSD/CRPS has spread, but nothing I cant handle

One of the things that has me confuddled is the way doctors pick and choose what they are going to try to fix on me. I get told conflicting things from every new doctor I see. I have been told by surgeons I have RSD, then get told by specialists that it may not be RSD. They think it is from a bad disk in my back. Sure there is a bad disk, but how can I explain that is just one piece of the puzzle problem?

Things are getting interesting now. Now they are sending me to a surgeon! Yep, a neurosurgeon, going to see of they can fix the lower back. This should prove very interesting, and I hope it takes away one aspect of pain I wont have to deal with anymore. Too bad they cant just cut pain out like they do with cancerous stuff. Wouldnt that be great! Just go get the RSD cut out!

To bad that isnt an option because I know quite a few people that would go for that option just so they could get their old lives back. Life isnt what it used to be for me, but I have learned to deal with the pain over the years, and actually look forward to waking up most of the time. I sure hope that all of my RSD friends find the place in their walk with RSD/CRPS, when they can enjoy life as much as they can while dealing with one of the most painful diseases on earth.

Hi all!

Been a while since the last blog as life has been dishing it out. In January of this year I lost my doctor. She decided she didnt like medi-cal, and dropped me as a patient. I then found out that almost all doctors didnt like this kind of insurance, and the ones that did were not that great.

That left me going to the ER and the county clinics. What an eye opener those visits were. Just the other day I finally got a doctor I can call permanent, at least until the Social Security kicks in. Anyways, it feels good to finally have a doctor I will see on a regular basis. This doctor, like all the others ive seen believes she can cure me to a certain extent. I havent had any kind of meds since January, so getting put back on some is gonna be nice. Although I have been on all of them in the past and it didnt cure me. It also will be nice to get all the results for the tests this doctor has ordered. Kinda interested in the sleep test, as I know I have troubles there. Only this doc thinks that fixing this problem will fix most, if not all the problems of with RSD.

We shall see.

Here it is the 7 year anniversary with RSD. It all started in the right leg, but now has spread to my entire body, and is also effecting my central nervous system. My blood presure is waaay up, and got the doctors wondering how they are going to get this monster under control.

Just when I think that it has reached its peak, and cant get any worse than it is. It get worse! The spread is probably the scariest thing to ever happen to me. I have read the RSD/CRPS doesnt spread in everyone, and I thought I was one of those people for the last few years.

Then one day in physical therapy they had me do a simple little excersize with my right arm. I felt the shoulder twinge in pain, and I stopped, buit it was too late. It has been almost a year and the shoulder doesnt feel any different at all, it hurts just as bad as the day I injured it. Not only that, but it spread into my left shoulder within a couple of months.

That kinda started the spread of the RSD throughout my body, at least into the limbs. Now I have it in all 4 limbs, lower back, right hip, and right side of my torso. The nervous system was attack before I injured the shoulder, but it has increased the problems in the nervous system since the spread.

I hope one day to report that I am getting better instead of always writing that I am getting worse. Maybe they will find a cure for RSD soon!